UNIFIED HUNTINGTON'S DISEASE RATING SCALE (UHDRS) and DATABASE
The UHDRS is a research tool which has been developed by the HSG to provide a uniform assessment of the clinical features and course of HD. The UHDRS has undergone extensive reliability and validity testing and has been used as a major outcome measure by the HSG in controlled clinical trials. UHDRS '99
UHDRS '99 represents an updating and expansion of the UHDRS to further enhance the utility and applicability of this research tool. A copy of the revised UHDRS '99 form is (will be) available on this HSG web site (in the near future). A revised UHDRS '99 manual will be provided to all HSG sites.
UHDRS Natural History Database
The current UHDRS database numbers nearly 4,000 individuals affected by or immediately at risk for HD. A cross-sectional and prospective analysis of the database was published in the March 1996 issue of Movement Disorders.
